Seeking Adults and Parents of Adolescents Diagnosed with Myotonic Dystrophy Type 1 (DM1) for Interview Study
What is the purpose of the study?
To better understand the experiences of those living with DM1, and to get feedback on questionnaires that may be used in future studies of new treatments for DM1. Up to 20 individuals (adults and adolescents) will be asked to participate in this study.
Who is eligible?
- Adults (18+ years old) and adolescents (12-17 years old) living in the US who have received a diagnosis of DM1
- Willing and able to participate in a 90-minute interview (web-based or telephone) in English
Other eligibility criteria may apply
What do participants need to do?
Call or email Audra Gold at RTI Health Solutions at 510-647-4310 or algold@rti.org to screen for eligibility for you or your child
If eligible, participate in a 90-minute telephone interview (can be split into multiple sessions if needed)
Adult participants will receive $125, adolescent participants will receive $75 and their parent will receive $50 electronic gift card in appreciation of their time
Who is conducting the study
RTI Health Solutions (RTI-HS) part of a non-profit research organization
